Monday, October 18, 2010
Finally an Update!!!
One of the biggest steps in her recovery is that she made it HOME!!! After over six long months of hospital and rehab care facilities...she made her way home to be greeted by her anxious family...homemade welcome home signs by her granddaughters....a newly painted bedroom...new carpet...and best of all...her new 'roller coaster' ride (aka the chair lift). Her loving husband is offering one free ride per person per lifetime. So come on over and experience it for yourself. :)
She is still suffering from extreme dizziness and nausea, so don't be offended if you come to visit and she keeps her eyes closed. She has a hard time opening them anymore because of how sick she gets if she does. But don't think she's sleeping....nope...she's fooled us enough with her little trick. She is usually well aware of what is going on, who is visiting, and not to mention every little sound that is made because her sense of hearing has taken over for her eyes.
Her sense of humor these days is off the hook! ;) She is so darn funny and quick to make light of any situation. If you are ever around when she starts to giggle...it is definitely contagious and probably the cutest thing you'll ever hear. She has started to get the feeling back in her upper lip and nose...so her smile is more of the smile we remember.
She has started to have regular physical, occupational, and speech therapy sessions throughout the week. She continues to try her best, although most days she doesn't feel like doing much of anything. Do you blame her? Her speech is probably the biggest improvement that I can see after not seeing her during the week. She is easier to understand, and is able to regulate her breathing better. She is still considered monotone...but is working on her high opera voice and every once in awhile her old voice sneaks through. I personally think she sounds adorable...but she thinks she sounds weird and scary. My girls and I love calling and talking to her on the phone and can for the most part understand anything she says. That is huge considering the news awhile back that her left vocal chord was paralyzed.
She has an appointment tomorrow to check her inner ear for any problems that could be causing the dizziness and nausea that she is experiencing. We are praying that they can find out the problem and realign whatever they need to so she can start living more of a normal day to day life. Please send some prayers her way!!
She is currently still being fed through a feeding tube. She has had more of a desire to eat certain things (smoothies, soup, ice-cream, raspberries) but she's still a long way from eating more than a few spoonfuls of anything.
I still can't believe she is going on her eighth month since she first got sick. She has mentioned multiple times that when she wakes up in the morning she keeps hoping that it's all just been a bad dream. I can't wait for the day that we can all look back on this and say that we made it. My dad continues to be such a great support and caregiver to her. There's nothing that he doesn't do. (Except maybe wake up to the high pitched beep on the food monitor that he can't hear due to the frequency! haha) He is such a wonderful husband, dad, and bompy to his grand kids. We're lucky he's around to take such good care of our mom!
My mom has also 'adopted' a third daughter, Debby. Debby is a CNA and an answer to our prayers about who we could get to take care of my mom while my dad was at work. She does such a great job, and fits right in to our family. We also appreciate the help of Haydee (she works every other Friday) and the many friends who have offered their time to just come visit or fill in when needed. My mom is a lucky lady to be loved so much!
And once again....a HUGE THANK YOU to the many friends and family members that show my mom, and my dad, so much love and support. It's amazing to see all the acts of kindness that continue to be poured out to them even after all of this time. You have all been so kind and thoughtful to our entire family, we can't thank you enough!
Hopefully it won't take me two more months to update this again. If you are still checking in....let us know in a comment. We read them all to my mom and she loves hearing her friends kind words of encouragement.
These pictures were taken while she was still at Orchard Cove, meeting Raylee for the first time. As you can tell, she is still the most favorite Nana around.
Monday, July 26, 2010
One day at a time. . .
She was able to get her throat x-rayed and have a series of swallow tests done to see if she would ever be able to eat real food again. She was pretty nervous for the trip in the van up the block to Lakeview Hospital, but my dad and I were able to be with her and she handled it all really well. She had a variety of different textures that she needed to swallow to see if she would aspirate any food into her lungs. She passed, with just a very small amount going into her lungs, with flying colors! They also figured out that if she turns her head to the left and swallows she does a lot better and avoids having to cough. We'll take any trick we can get to get her doing 'normal' things like eating again. She was told that starting to eat again would be as hard as her physical therapy is to her now. She will be using muscles that she hasn't used for almost 5 months now. Her speech therapist has been slowly introducing puddings, applesauce, and different liquids, and my mom has been doing very well with these, although she still has NO desire to eat any of them.
She is still experiencing nausea as well as some gagging problems. They're not sure what to blame for these problems, maybe the strokes that she has suffered from. We are hoping to figure it all out so we can eliminate these things so she can focus entirely on rehab and getting better. She has been such a fighter when it comes to physical therapy. She has walked (with assistance from her therapists and walker) around the entire facility where she's at with only one break, stood from a sitting position in her wheelchair to her walker all by HERSELF, and many other huge things for her. My mom's sister, Patti, was able to visit from North Carolina and join with us in a family game of Wii bowling during one of her therapy sessions. We had a great time, and even got a few laughs out of my mom. Those moments are so awesome to see!!
Her incision from the operation on her abdomen has almost entirely closed up. It's been pretty amazing to see heal. The doctors and nurses at LDS hospital told us to plan on 6 months or more for it to close up. She is ONE MONTH ahead of schedule...something that we are very excited about. Her bed sores on her back have entirely healed up and only seem to hurt her when she sits for too long or has to sit on her shower chair.
My mom was able to see the blessing of her first grandson on Sunday. My sister was able to arrange the blessing to be next door at Barton Creek (where my Grandma lives). It was so nice to help my mom get ready and help wheel her over to be a part of that. She had been pretty nervous about it all morning, since it has been months and months since she has been around big groups of people. Everyone was so kind and understanding. She did great! And the blessing was wonderful. It was just one of those steps that my mom needs to get back to doing the things that will make her feel normal again.
Although this has been the hardest thing my mom, dad, and our family has ever had to go through, I have been amazed at the miracles that have taken place and the love that I know my Heavenly Father has for her and for all of us. It would be easy to be mad that all of this had to happen to my mom, and believe me I have had many feelings that have leaned this way. But I know that she is being watched over, that she is loved beyond belief, and that He is carrying her through this with the help from so many. She couldn't do it without the love and support she feels from so many of you. Thank you....a thousand times again and again!! Your prayers keep her going!
Wednesday, June 30, 2010
Slow and Steady Wins the Race!
My mom is still having to fight every day. She fights for the will to wake up after lousy nights of sleep from itching (from a bad rash that has broken out over her body), to nausea and a horrible gag reflex, to bed sores that are still healing, to fighting as hard as she both mentally and physically can with her physical and speech therapy sessions. The list could go on...
She was able to go and see a throat specialist a few weeks ago to see about why her speech hasn't been progressing like it should be. He told her that her left vocal chord had been paralyzed. She was pretty upset about this news, but I keep reminding her that her 'real' voice is still heard when she yawns, now it's just her needing to learn how to use it again. Her speech therapist is very helpful and has given her many exercises for her to use to start learning how to deal with this problem. She is able to whisper and get some sound out (I joke and say she sounds a little like Yoda), but unless you're patient and listening close it's hard to understand because her mouth doesn't form the words like our mouths do. She is working hard on that, and sometimes needs to be reminded that she can talk instead of just simply nodding her head.
She was also able to go and visit a Neurologist over at Lakeview Hospital. He too, was a bearer of some bad news. She has experienced extensive brain damage (affecting mostly her motor skills), and so many small strokes throughout her whole body, that he told her that she would never get back to the 'normal' that she experienced before all of this happened. At first reaction, it seemed like reality hit us all (especially my mom) hard in the face. But after much thought, prayer, tears, and consoling, my mom has decided to not give up but to try harder than ever to get back to a 'normal' that will be worth living. We are very hopeful that this can happen. I have to keep reminding myself, as well as my mom and dad, that 'normal' is totally overrated!! I mean...she did marry into the Parrish family...and they are far from normal! ;) Seeing her reaction and attitude to this news has made her more of a hero than she already was to me. She is fighting not only for herself, but for everyone who loves her!
I was able to see, along with my dad and my sister Katie, her walking for the first time during her Physical Therapy session last weekend. She continues to need help getting out of bed and up to a standing position. She also needs the support of someone on each side of her as she pushes her walker down the hall to the gym. It was an incredible thing to witness. Her body is still so weak from the strokes and infection that she's experienced, but her will to get through all of this is huge! It's comparable to a child learning to walk for the first time. A little wobbly, but she'll get there. I wish when I would come to be with her on weekends that I would get to see more therapy sessions like this. Usually she is too tired from her week full of the gym to do much of anything when I come. So last weekend was sure a special treat! Thanks Mom!!
I continue to be amazed at all of the love and support that she receives from not only family, but from friends...old and new. She is so lucky to have all of you! Your cards, flowers, visits, prayers, thoughts, and time spent with her, mean more than you'll ever know. I hope blessings are being poured out to each of you in return for your kindness and love for my mom, dad, and family.
Many of you have asked about how my dad is...he's amazing just like my mom! I have never seen him be so supportive, loving, tender, and kind to my mom and her needs. He hasn't missed a day yet at being by her side during some portion of the day. The nurses and aides joke with him about having to put him on payroll because he does so much. He is able to turn her when she needs to change positions, turn off the beeping monitors and not get in trouble, and unclog her food line when it stops working. Pretty impressive if you ask me! He is experiencing a lot of stress and heartache watching his wife have to go through this, but all of your love and support for him has been overwhelming as well. He couldn't do it without the many who volunteer to come sit with my mom during the day, to the many meals he gets from angels in his ward, to the 'yard fairy' who comes and mows his lawn and plants flowers, to all of the primary kids who continue to make him feel like a super star at church, to those who visit to lift his spirits as well as my moms! He is grateful for ALL of you!
I will continue to update as much as I can. I call my dad every night for the daily update, and sometimes he's not too cooperative! ;) Your continued love, support, and PRAYERS are so appreciated!! My mom knows it's what's keeps her going!!
Tuesday, June 22, 2010
Tuesday, June 1, 2010
June 1, 11:30a update
Wednesday, May 19, 2010
Wednesday, May 19th, 11:00p update
Friday, April 30, 2010
April 30, 1:00p update
Friday, April 16, 2010
April 16, 6:30p update
Thursday, April 15, 2010
Monday, April 12, 2010
April 12, 1:00p update
It's now been five weeks since Linda was admitted to the hospital. Since my last update one week ago (my apologies for the length of time that has passed), she's made some amazing strides in her recovery.
Monday, April 5, 2010
April 5, 2:00p update
Wow...where did the last couple of days go? Here's the latest update:
Wednesday, March 31, 2010
March 31, Midnight update
Sunday, March 28, 2010
March 28, 6:30p update
Friday, March 26, 2010
March 26, 3:30p update
Tuesday, March 23, 2010
March 23, Midnight update
Monday, March 22, 2010
March 22, 5:30p update
Sunday, March 21, 2010
March 21, Midnight update
Saturday, March 20, 2010
March 20, 6:00p update
Friday, March 19, 2010
March 19, 6:00p update
Thursday, March 18, 2010
March 18, 2:00p update
Wednesday, March 17, 2010
March 17, 5:30p update
Tuesday, March 16, 2010
March 16, 5:30p update
Monday, March 15, 2010
March 15, 2:00p update
Last night I talked to my brother Dave. As he updated me on Linda's condition, he mentioned that she had a twinkle in her eye when she looked at Lynn and that her eyes seemed to follow him and she responded when she heard his voice. I was touched by the love that transcends the physical. When our earthly bodies are weak our spirits recognize what is most important--eternal love! Thank you Lynn for always loving our sister!
Sunday, March 14, 2010
March 14, 9:00p update
Saturday, March 13, 2010
March 13, 2:30p update
Today is my brother Dave's birthday (our update blogger) and as I was thinking what I could do for a man who has everything, these many miles away, it came to me that Linda would want me to wish him a VERY HAPPY BIRTHDAY on her behalf. She would tell him how much she loves him and how grateful she is to have him for her brother. She would want him to know how much she appreciates his kindness this past week. She also might make a smart remark about his age but I'll let her do that when she wakes up!
Friday, March 12, 2010
March 12, 8:30p update
March 12, 2:00p update
Thursday, March 11, 2010
March 11, 7:30p update
Linda made it through her third surgery this afternoon in stable condition. They did a little more cleaning of her abdominal cavity and removed some additional tissue that was infected from her abdominal lining.
March 11, 1:30p update
Hi Everyone,
Wednesday, March 10, 2010
Wednesday, March 10th, 1:00p update
Last night (Tuesday), Linda had her second surgery on her abdominal cavity. The surgery lasted just under an hour and she remained stable throughout. This was the second of several surgeries intended to clean out her abdomen and check for any additional infection. According to the surgeon, Linda did very well during the surgery and, to his surprise, everything looked very clean. Her intestine, colon and bladder all seem to be healthy and without signs of infection.
Tuesday, March 9, 2010
- Her kidneys have completely shut down and she’s already had a couple of dialysis treatments. Upon arrival at LDS hospital last night, they relocated her dialysis shunt from her groin to the right side of her neck in preparation for her up to receive constant dialysis treatment instead of the periodic treatment that you would normally receive. They’re thinking this will help reduce the buildup of any toxins between treatments while her body’s fighting this infection.
- She’s still unconscious, in critical condition, and on total life support.
- Her incision from her 4-hour surgery yesterday has been left open so that the swelling and infection can subside before they can close it properly. They plan on taking her back in to surgery in an hour or so to irrigate and clean her abdominal cavity and incision from further infection and pus. Her current doctors also suspect that her enlarged uterus was not the cause of the infection so they are hoping to find the source during surgery.
- She is suffering from a severe strep infection.
- Her heart is functioning at 50% of normal capacity
- She had a 107 degree temperature yesterday but it has subsided to a 102-103 level today.
- Her coloring and skin temperature is much better today.
- She has yawned/moved her mouth for the first time within the last hour.